HIFA2015-CHILD2015 Webinar 5: The role of children and adolescents in health decision-making, 27th June 2013
Organised by the CHILD2015 Working Group in association with the International Society for Social Pediatrics and Child Health (ISSOP)
Start: 3pm (UK/London time)
Duration: 50 minutes (30 minutes presentation plus 20 minutes discussion)
Speakers: Gonca Yilmaz, Ayesha Kadir
Theme: It is widely believed that children and adolescents lack capacity to make informed contributions to decision-making, and that doing so may place them at risk and have adverse consequences on their health. However, the experience of child participation around the world provides a growing body of evidence, not only that these concerns are unfounded, but that participation has a widespread positive impact. This webinar will look at the UN Convention on the Rights of the Child (http://www.unicef.org/crc/ ) and its application to the right of children and adolescents to participate in decisions relating to their health and health care.
Topics:
  • What participation means, from the UNCRC
  • The ladder of participation
  • The benefits of participation
  • Examples of participation:
    Case #1 – A family makes plans for their 8-year old girl to undergo female genital mutilation.
    Case #2 – A 14-year-old girl is inseminated by her uncle and becomes pregnant.
    Case #3 – A 10-year-old boy develops enuresis nocturna.
    Case #4 – A 9 year old girl with terminal acute lymphoblastic leukemia(ALL) rejects therapy and wants to go home.
    Speakers:
    Gonca Yilmaz is a member of the executive committee of the European Society for Social Paediatrics and Child Health. She is a social pediatrician in a training hospital in Ankara, Turkey, and has a postgraduate degree in social pediatrics. Her interests include child rights, child abuse and neglect management, well child baby care, and infant nutrition.
    Ayesha Kadir is a Paediatric Clinical Fellow at King’s College Hospital, UK. She was previously a Pediatric AIDS Corps Physician at the Baylor International Pediatric AIDS Initiative, USA. She has an interest in human rights (especially child rights), HIV infection and malnutrition. She is coordinating a study of the social determinants of child health together with colleagues in the UK, Africa and Eastern Europe. She is also working on an initiative in the US to make human rights training a standard part of medical education, as a means to promote a rights-based approach to care. She would welcome contact from others with a similar interest to share ideas and collaborate.
    Registration
    Registration (free) is encouraged so that we can better meet your needs. To register, send an email with your name, position/job title, institution, country of residence, and brief description of professional interests, to: webinars@hifa2015.org
    How to prepare for a HIFA webinar
    We shall use the web conferencing tool Blackboard Collaborate (formerly called Elluminate), gratefully provided to HIFA2015 by the University of Iowa. If you are using the system for the first time it is recommended that you set up your computer now. This will ensure you do not face technical problems on the day. The HIFA2015 virtual room is open 24/7.
    Instructions to set up are here. This can be done any time, any day. Once you are set up, you will be able to participate in any HIFA2015 Webinar.